Is to quote from an email I sent this morning to some dear friends.
Please continue to pray for Tim. Getting a firm diagnosis that more than one doctor can agree upon has been impossible. He’s been out of school for several weeks now, is supposed to be going back the week after next, but we’ve seen no significant, lasting improvement in the tremors and spasms even through several courses of steroids (provide temporary decrease). He has been infection free for a little while, however, so that part of our reasoning for taking him out of school on a medical note (with home tutoring) has at least proven correct. Our pediatrician has been diligent in seeking consults, but they take a long time to schedule and one seems like it will never happen. I’m tired of the physical nightmare Tim’s going through, and he’s beyond that as his body simply refuses relief from any medical or prayerful remedy. We’ve an appointment with our pediatrician and another mother and teenager (Penny and Calley) with eerily similar symptoms (but nothing else in common with Tim, which is baffling) to see about pursuing a consult at the Mayo Clinic’s pediatric diagnostic unit. None of this happens quickly.
I’m also flailing around trying to keep up, but not really managing to effectively, with my year-old “new” job that I feel as though I haven’t started to do much at all. Maintenance mode is not my style or calling, and I’m finding myself to be wholly unreliable at even that. I tried to resign, twice now actually, but they aren’t having it. Yet, they’re needing me to be more present there and more reliable there. I’m also having struggles physically myself, numbness/tingling in my hands and elsewhere along my spine with certain movements (like looking down)… could be carpal tunnel (in both hands, starting at the same time?) or something else. Initially set on shortly after my return from the NYWC in November, went to the doc pretty quickly, he did tests which discovered my pernicious anemia (which can cause tingling), began treating it which alleviated some of the tingling, but 6 months later what remains needs to be evaluated by a neurologist. Waiting to hear when the appt is scheduled and praying it will “fit” into the need to have someone
with Tim all the time (he’s been falling alot).
Cathie is needy, in that she’s 15 and struggling through all that brings, plus having home be chaotic and plans be haphazard by necessity. Tom is coping by running a lot, working a lot, and keeping his routine as normal as he can possibly manage. He just had a nickel-sized suspected basal cell lesion removed from his left temple, he gets the 2 inch row of stitches removed and the cytology results this afternoon. Of course, we already know that it’s cancerous – the doctor said its appearance and characteristics left little margin for doubt. I have no idea what that means for us, the removal could be the end of it, or it may be a serial thing, or it could have spread (because he tried to ignore a wound that wouldn’t heal on the side of his head for a VERY long time before finally giving in to my plea to address it with his doctor). Basal cell is something, as I understand it, that rarely spreads, but can. So, we shall see.
That’s about all I can say at this point. Need to do some work while Tim’s still sleeping.
Love you all..