Back on July 8, a prayer was answered, and an appointment with a highly recommended specialist was granted. To refresh:
Health-wise, Tim is about the same. His symptoms vary a bit, but over time are consistently present daily in some manner of abnormal movement. Of course, the frustration of not being able to find a doctor that will pursue this to a diagnosis continues. Four neurologists, a rheumatologist, two psychiatrists, a team of hospital pediatricians, and our determined pediatrician… plus an assortment of radiologists, and ER docs. The psychiatrists say, “this isn’t a conversion disorder, keep looking for a neurological origin” while the neurological (and rheumatological) folk we’ve seen thus far say “this isn’t neurological, it’s psychiatric.” Yeah, ok… that’s super-helpful. One of the neurologists honestly said “I don’t know, I’ve never seen anything like this before.” I wanted to hug him.
The psychiatrist has been very kind and supportive, and we’ll keep taking Tim to see him while we’re tilting at the diagnosis windmill. After that, we’ll see if it’s still worthwhile. He did suggest a particular child neurology specialist at Strong Memorial Hospital, whose receptionist refused to schedule Tim because he’s nearing his 18th birthday. When another respected doctor also suggested the same specialist, and I discovered that our pediatrician had already sent Tim’s test results and a summary letter to his office, I wrote a letter hoping to get past the ‘law’ and into the grace of the situation.
Yesterday’s mail brought a reply – an appointment for August 21 with the highly recommended specialist in Rochester! That is completely an answered prayer!
That appointment date is finally here, one we’ve been waiting for, one we’ve been trying not to pin to many hopes on, but one where we do hope to be heard and maybe even to get some answers.
Tim is doing fairly well as he adjusts to the latest tweak in his medication, but to have a name for what “it” is and to know what to do about it. He’s hoping to be able to do what seniors in high school do, and we want that for him as well. Our hope for him, since the moment we knew he existed, is that he know and honor God in his life and live into the purpose for which he was created. So, we continue to search for the path to health and healing as God opens doors.